Patient Advocacy Groups
Patient advocacy groups specializing in dystonias are here to help you. They are devoted to providing support, resources, and services for patients and families. Join these groups to help yourself, your family, and other patients.
Immune Deficiency Foundation
Supports, educates, and empowers people affected by primary immunodeficiency while advancing diagnosis, treatment, and quality of life through advocacy, community, and research.
Primary Ciliary Dyskinesia Foundation
Supports, educates, and empowers individuals and families affected by primary ciliary dyskinesia while driving research, awareness, and improved clinical care to advance better lives and better outcomes.