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Patient Advocacy Groups

Patient advocacy groups specializing in dystonias are here to help you. They are devoted to providing support, resources, and services for patients and families. Join these groups to help yourself, your family, and other patients.

IDF logo

Immune Deficiency Foundation

Improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency.

PCD Foundation logo

Primary Ciliary Dyskinesia Foundation

Works to improve the quality of life of those affected by primary ciliary dyskinesia (PCD) and to develop the means to find a cure.