Bringing together patients, physicians, and researchers to improve the lives of those affected by these rare disorders

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Research offers no guarantees, but discoveries cannot be made without your help. Every active role a patient takes is one step closer to finding new treatments.
Find a StudyRare Research Report: March 2023
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research.

Rare Research Report: February 2023
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research.

Rare Research Report: December 2022
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research.
