Resources for Patient and Families

PCD COnnect Registry

PCD Connect Registry

How can you help move PCD research forward? Enroll in PCDF Connect, a registry for patients with Primary Ciliary Dyskinesia, to help demonstrate the size and engagement of the PCD community and to learn more about clinical trials you may be eligible for. PCDF Connect is open to everyone in the PCD community, while clinical trial participation depends on the specific study and eligibility criteria.

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Resources_Patients-Families_

MedlinePlus Genetics

MedlinePlus Genetics is an an online health information resource from the National Library of Medicine (NLM) that offers consumer-friendly information about the effects of genetic variation on human health.

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MedlinePlus_Cystic-fibrosis

National Library of Medicine Fact Sheet: Cystic Fibrosis

Review the  frequency, causes, inheritance, and other names for cystic fibrosis. 

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MedlinePlus_Primary-ciliary-dyskinesia

National Library of Medicine Fact Sheet: Primary Ciliary Dyskinesia

Find helpful information for primary ciliary dyskinesia patients,  including frequency, causes, inheritance, and other names for the disease. 

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MedlinePlus_Cri-du-chat-syndrome

National Library of Medicine Fact Sheet: Cri-du-chat Syndrome

MedlinePlus Genetics provides an overview of cri-du-chat (cat's cry) syndrome, including frequency, causes, inheritance, and other names for the disease. 

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