What happens when a community comes together with a shared purpose? We ignite hope for what’s possible.
Last week, the PCD Foundation welcomed patients, families, researchers, clinicians, and supporters to Chicago for An Evening to Ignite Hope, celebrating the launch of our Network for Clinical Trials and the generosity that makes this work possible. Watch the video from the evening to learn more about the Network and what your support makes possible: https://youtu.be/WFGkbsNj59M
The PCD Foundation’s Network for Clinical Trials (NCT) is focused on creating opportunities to move promising research forward in partnership with the people it is meant to serve. Patients and families deserve to be partners in shaping PCD research, and clinical trials cannot move forward without the community.
Ready to help shape the future of PCD research? Talk with your PCD care team about opportunities to get involved, visit clinicaltrials.gov to browse current trials, and make sure you are enrolled in PCDF’s Registries to stay engaged with PCD research. Enroll in the PCDF Connect registry as a first step. PCDF Connect is open to everyone in the PCD community, while clinical trial participation depends on the specific study and eligibility criteria: https://redcap.vumc.org/surveys/?s=7YXRX7JHDHFMAYJ7
